The Brain Injury Network policy statement of December 2012 states that third party advocates and additional stakeholders have a duty to accurate report the issues and concerns of the brain injury survivor community. They also have a duty to be politically correct and politically sensitive regarding the brain injury survivor community.
A non-profit organization with over 30 years of experience providing support services to individuals facing the life challenges of cognitive, intellectual, developmental disabilities and behavioral health issues. (207) 564-2464
Listing added: Feb 15, 2013)
The Brain Injury Network, an all-survivor U.S. national and international nonprofit organization, has announced its recommendations for laws and legislative efforts that will protect and enhance the lives of individuals with acquired brain injuries.
BIN is pleased to announce that a new policy statement was adopted by the BIN Board of Directors on Oct. 16, 2011. The BIN Board of Directors is comprised of brain injury survivors. The policy is entitled Stigma, Marginalization and Stereotypical Thinking Regarding People with Acquired Brain Injuries.
We at the Brain Injury Network survivor advocacy organization recommend the retirement of the term Persistent Vegetative State. In lieu of PVS, we ask that the medical community adopt the term “Persistent Wakeful but Unaware State” (PWUS). This term includes the requisite components of the diagnosis which are wakefulness yet unawareness. In the alternative, we have noted that on occasion the term Persistent Unaware State (PUS) is used, but it is not quite as illustrative as PWUS, in our lay persons’ opinion. However, it is clear to us, the brain injury survivor community that neither PWUS nor PUS would be so insensitive, dehumanizing or charged a term as PVS. Source: Brain Injury Network
Policy Statement from the Brain Injury Survivor Community Regarding Post-Acute Medical Environments, Assisted Living Facilities and Nursing Home Placements for People with Brain Injury; Use of Psychotropic Drugs
"These leaders with traumatic brain injuries show that many survivors can work independently and selflessly for the greater good of our brain injury survivor brain injury community. Many have worked with little fanfare and little acknowledgment of their work. We wish to extend our thanks to these trail blazers. We hope they are pleased to be listed in this honor roll of contributors." Honor Roll of early TBI Survivor Leaders. Source: tbisurvivors.net
People with traumatic brain injuries (TBI) have the same human rights afforded to other human beings. Any abridgement of a tbi survivor’s natural and/or legal rights must be given full scrutiny by appropriate legal authority. Source: tbisurvivors.net Author: Sue Hultberg, MA, JD