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This is the first ever USA national and international brain injury (abi which includes tbi) survivor policy and collective advocacy online forum. This online social community has developed, implemented and disseminated public policy on behalf of the brain injury survivor community since 2006. Everyone involved is a brain injury survivor and a brain injury survivor advocate. This is also a chat; peer support; information, education and referral online social community. This group is survivor operated and survivor-led. The owner/moderator is a tbi (traumatic brain injury) survivor. SABI is affiliated with the Brain Injury Network, a Section 501(c) (3) nonprofit advocacy organization and network operated by and for survivors of brain injury. Topics discussed include survivor priorities, brain injury survivor human rights, best practices for service provider organizations, government public policy, problems with insurance, community access, health care costs, basic safety-considerations, patient empowerment, patient advocacy, community reintegration, post tbi, Post TBI Syndrome, assistive devices, medical research standards, privacy and safety on the Internet, assessing social communiities, standards for college programs for students with brain injury, sport injuries, children and brain injury, school and brain injury, and a host of other topics.
http://health.groups.yahoo.com/group/survivoracquiredbraininjury
(Clicks: 218; Comments: 0; Listing added: Feb 2, 2008) Listing Details Report Broken  Listing
BIN is pleased to announce that a new policy statement was adopted by the BIN Board of Directors on Oct. 16, 2011. The BIN Board of Directors is comprised of brain injury survivors. The policy is entitled Stigma, Marginalization and Stereotypical Thinking Regarding People with Acquired Brain Injuries.
http://braininjurynetwork.org/publicpolicy/stigmamarginalization.html
(Clicks: 9; Comments: 0; Listing added: Dec 12, 2011) Listing Details Report Broken  Listing
This Cause on Facebook supports the efforts of the Brain Injury Network to advocate on behalf of the acquired brain injury (abi) community.
http://www.causes.com/causes/221624-brain-injury-network-abi-advocacy-by-and-for-abi-survivors
(Clicks: 9; Comments: 0; Listing added: Jan 18, 2011) Listing Details Report Broken  Listing
SABI means "Survivor of Acquired Brain Injury" and also "Survivor Advocate regarding Brain Injury". This term was coined by abi survivor (and tbi survivor) Sue Hultberg in the year 2000. The term is used as a rallying term for survivor advocates who are associated with the Brain Injury Network, an international and USA national brain injury survivor advocacy non-profit organization that operates from Santa Rosa, California. The Brain Injury Network hosts several SABI advocacy forums online. SABI advocates are interested in the creation and dissemination of survivor public policy. SABI advocates think in terms of a survivor-driven agenda.
http://sabi.name
(Clicks: 234; Comments: 0; Listing added: Apr 22, 2010) Listing Details Report Broken  Listing
This online social community is dedicated to bringing people with brain injuries together to work collectively on public policy and advocacy concerns of our surivor brain injury community. In addition, the SABI network provides a social and peer support gathering point on the Internet where attention to privacy concerns is more important than produciing a public archive forum which may be seen by all. SABI is not interested in disclosing survivor stories for advertising or securing some form of profit. SABI does not harvest "patient data". SABI does not sell member information nor does it seek commercial endorsements.
http://health.groups.yahoo.com/group/survivoracquiredbraininjury/
(Clicks: 15; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
"Saebo, Inc., is a leading global provider of innovative rehabilitation products for stroke survivors and other neurologically impaired individuals.... Saebo’s pioneering treatment protocols are based on new research documenting the brain’s remarkable ability to “re-program” itself following injury."
The company’s neurological orthotic devices and materials include SaeboFlex and SaeboReach. See also SaeboStretch, Saebo Inpatient Kit, Saebo Outpatient Evaluation Kit, and SaeboGear.
Contact:
Saebo, Inc.
Six LakePointe Plaza
2725 Water Ridge Parkway
Suite 320
Charlotte, NC 28217
Phone: 888-284-5433
Fax: 704-424-2911
Email: sales@saebo.com
http://www.saebo.com/
(Clicks: 9; Comments: 0; Listing added: Mar 9, 2010) Listing Details Report Broken  Listing
High-intensity, repetitive rehabilitation exercises can help people with stroke improve functioning in their paralyzed arm and in their quality of life even years after their disabling event, according to results presented at the American Stroke Association's 2010 International Stroke Conference
News Source: Medical News Today
http://www.medicalnewstoday.com/articles/180633.php
(Clicks: 3; Comments: 0; Listing added: Mar 9, 2010) Listing Details Report Broken  Listing
Survivor Priorities and Survivor Community Priorities
Access to counseling, education, information, medical treatment and mental health services.
Affordable clothing, food, health care, housing, rehabilitation services, and transportation.
An accessible world.
Assistive devices and medical equipment.
Assisted housing.
Caregiver help.
Community reintegration programs.
Crisis management.
Disability insurance.
Dignity.
Disability Insurance.
Educational programs dealing with health, prevention, public awareness and safety.
Help negotiating the system.
Help transitioning from the hospital and rehabilitation setting to the community (community reintegration services).
Honesty.
Independent living skills training.
Information and referral services.
Insurance covering rehabilitation, for example, cognitive, occupational, physical, and speech therapy rehabilitation.
Insurance in spite of our having brain injuries.
Job training, follow-along and accommodations.
Medical insurance.
Peer support.
Programs to teach people with brain injuries strategies that help them overcome cognitive, physical and behavioral issues.
Programs to apprise us of our strengths and to help us utilize our strengths.
Ombudsmen.
Research.
Respect.
Safe programs.
Special interventions for survivors who are isolated, disabled or homeless.
Universal health care.
Source: Brain Injury Nework. ABI Advocacy by and for Survivors of Acquired Brain Injuries
http://braininjurynetwork.org/publicpolicy/survivorpriorities.html
(Clicks: 17; Comments: 0; Listing added: Jan 3, 2010) Listing Details Report Broken  Listing
This is a Facebook group started by a tbi and abi survivor in Canada. It has an international membership. Please note: All content in this group is public.
http://www.facebook.com/group.php?gid=2549346291
(Clicks: 8; Comments: 0; Listing added: Nov 30, 2009) Listing Details Report Broken  Listing
Nancy Bauser, ACSW, BCETS, BCDT. Brain Injury Survivor. This site provides support, resources, and inspiration for survivors of brain or other traumatic injuries, disabilities or illnesses. She has penned the book A Guide for Facilitators, which is available from Amazon.
http://www.survivoracceptance.com
(Clicks: 6; Comments: 0; Listing added: Nov 30, 2009) Listing Details Report Broken  Listing
This is an international survivors-only advocacy, chat and peer support forum board. The owner/moderator is a survivor. SABI is affiliated with the Brain Injury Network, a Section 501(c) (3) nonprofit organization operated by and for survivors of brain injury.
http://health.groups.yahoo.com/group/survivoracquiredbraininjury/
(Clicks: 2; Comments: 0; Listing added: Nov 30, 2009) Listing Details Report Broken  Listing
A stroke is caused by a clot or a bleed in the brain which causes brain cells to die. Adapting to the physical, emotional and social consequences of the stroke ... Head Injury can result in one or more physical, cognitive, emotional and behavioural deficits....
http://www.royalbucks.co.uk/stroke.htm
(Clicks: 8; Comments: 0; Listing added: Sep 6, 2009) Listing Details Report Broken  Listing