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Listings Found: 227
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Susan C. Hultberg, president of the Brain Injury Network, an international and U.S. national advocacy organization for people who have sustained brain injuries, is pleased to announce the publication of her new book entitled Brain Injury Advocates: The Emergence of the People with Acquired Brain Injury Human and Civil Rights Movement. The book is currently available for purchase at the following link:
https://www.createspace.com/3601205
https://www.createspace.com/3601205
(Clicks: 119; Comments: 0; Listing added: Aug 2, 2012) Listing Details Report Broken  Listing
Partner
This nonprofit agency is a USA national and international survivor of abi or tbi advocacy organization operated for and by survivors. We are interested in promoting the human rights and civil rights of persons who have sustained acquired brain injuries. We have developed and are disseminating a public policy agenda which reflects our concerns for our community.
http://www.braininjurynetwork.org
(Clicks: 664; Comments: 0; Listing added: Jan 29, 2008) Listing Details Report Broken  Listing
In this policy statement dated 3-17-13 the Brain Injury Network affirms that individuals with acquired brain injuries have the right to maintain relationships with their minor children.
http://braininjurynetwork.org/publicpolicy/parentalrights.html
(Clicks: 3; Comments: 0; Listing added: Sep 12, 2013) Listing Details Report Broken  Listing
Brain Injury Network press release regarding the human rights issues of people with acquired brain injuries. MarketWire Press Release Dated 1--11-11
http://www.marketwire.com/press-release/brain-injury-network-announces-human-rights-issues-concerns-people-with-acquired-brain-1378740.htm
(Clicks: 8; Comments: 0; Listing added: Jun 19, 2011) Listing Details Report Broken  Listing
August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States.
Topics:
Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed
National Standards
Regulation of College Disability Programs
Review of College Disability Programs
Public Access to Information about College Disability Programs
http://braininjurynetwork.org/nationalstandards.html
(Clicks: 49; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
Post-Secondary Education Brain Injury Program Protocols as developed by the Brain Injury Network (BIN)
Article dated 9-9-09
This section discusses the Brain Injury Network recommendations for nationwide protocols for postsecondary level college programs for students with brain injuries. These protocols were developed by the Brain Injury Network in the years 2005-2006. Let us keep in mind that many people with brain injuries have very few options for rehabilitation from their injuries. One of the few available, affordable, resources for cognitive retraining, or training, is the postsecondary educational system....Therefore, we recommend the creation of nationwide protocols for all postsecondary education programs for students with brain injuries. (In fact, we espouse “national standards for college programs”.)
http://braininjurynetwork.org/postsecondaryprotocols.html
(Clicks: 14; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
Article on Brain Injury Advocacy from the Brain Injury Network web site. BIN is an abi survivor advocacy organization.
"We also believe in collective-advocacy by and for our survivor community. Collective-advocacy is the process by which we people with acquired brain injuries organize, formulate, collaborate, reach consensus and articulate for our collective survivor community's interests.... Our advocacy reflects our concerns and spells out some particular policies and protocols that we believe will be in the best interests of our community. Please study our position statements. Please initiate and carry out policy that will promote our policy concerns. Thank you."
http://braininjurynetwork.org/braininjuryadvocacy.html
(Clicks: 13; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
The Brain Injury Network - ABI Advocacy by Survivors Cause on Facebook.
Please help brain injury survivor advocates raise public awareness about issues of importance to our survivor community.
http://www.causes.com/causes/221624
(Clicks: 22; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
The survivor board of directors approved public policy position statements of the Brain Injury Network (BIN), a survivor advocacy US national and international organization. The organization has been operational in Santa Rosa, Ca. since 1998. Two key missions of the Brain Injury Network are to formulate public policy that will best serve people with acquired brain injuries and to advocate for said policies on a USA national and international level. The organization has developed over 70 policies on behalf of the brain injury community with more policies in development. Additionally, policy dissemination is an ongoing project of the Brain Injury Network. The entire focus of the Brain Injury Network is survivors of acquired brain injuries.
Policy Topics as of 6-15-11:


Safety First

Ability Rights
ABI (Acquired Brain Injury) Subclassification Hierarchy
Advocacy Agencies
Advocate Competency
Advocates: Disclosure
Assessments
Assisted Living Facilities


Best Practice Guidelines
Bicycle Helmet Law
Building Code Standards
Brain Injury Community


Civil Rights
Classification of TBI
Clinical Research
Cognitive Retraining (also called Cognitive Therapy or Cognitive Training)
Community Reintegration (Reintegrative Services)
Comprehensive Health Reform
Conflict of Interest
Counselor Training
Crime


Department of Mental Health
Dignity
Disability Rights and Issues
Disclosures, Advocates
Disclosures, Medical Providers
Disclosures, Researchers
Disclosures, Web Sites
Doctor Education
Drug Companies


Empowerment, Patient


Financial Institutions
Florescent Lighting
Funding Priorities for Survivors


Gold Standard Research Studies


Helmet Law
High School Graduation
Hospital Privacy
Hospital Settings
Human Research Guidelines
Human Rights


Identification as People
Incarcerated Criminals with TBI


Law Abiding Survivors (We are the great majority.)
Law Enforcement
Least Restrictive Living Environment
Legal Rights
Local and County Services
Local Services vs. National Centers; Costly Duplication
Living Environments
Locked Facilities


Mandated Reporter Law
Medical Device Makers
Mental Illness


National Centers; Costly Duplication
Nursing Home Placements


On-Line Networking Web Sites
On-Line Recruitment of Patients
Organizations or Providers Offering Money to People with Brain Injuries or the Families of People with Brain Injuries


Patient Data Harvesting
Patient Empowerment
Patient Recruitment and Covert Devices Online to Recruit Patients to Medical Research Studies
Patient Recruitment Methodology Online or through Social Media
Persistent Vegetative State (PVS)
Persistent Wakeful but Unaware State (PWUS)
Physician Disclosures
Post-Acute Medical Environments
PostConcussion Syndrome
Post-Secondary Education
Post-Secondary Programs
Post-TBI Syndrome Diagnosis, Research and Treatment
Privacy On-Line
Privacy Settings on Web Sites Designed for Brain Injury Survivors
Profiting from Exposing Brain Injury Survivors' Identities
Psychologist Training
Psychotropic Drugs, Use of
PTSD (Post Traumatic Stress Disorder)


QEEG


Raising Money to "Promote" Medical Research
Recruitment Methodology
Removal of Life Support
Research Studies


School Age Children with ABI
Skiing and Helmets
Social Community and On-Line Networking Websites
Social Communities for People with Brain Injuries
Social Media
Societal Norms and Conventions
Sports or Athletics Activities: A Good Mind for Life is more important than a Trophy
Stakeholders
Stigma and Brain Injury
Strokes are not TBI's
Subclassification Hierarchy of Acquired Brain Injury (ABI)
Support Group Facilitation
Survivor Advocacy
Survivor Advocates
Survivor Identity, Exposure of
Survivor Priorities
Survivor Social Communities
Survivor Stories in Media


TBI is a Subset of ABI
Terminology
The Term "Survivor"
Third Party Stakeholders

Universal Health Care


Veterans, US Armed Forces
http://braininjurynetwork.org/publicpolicyindex.html
(Clicks: 22; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
Why We Need Collective Advocacy
Article: We survivors speak best regarding our issues and regarding advocacy and public policy invovling our brain injury survivor community.
This site is dedicated to the world-wide brain injury community and especially to those who wish to participate in collective advocacy via the Brain Injury Network, a survivor advocacy organization.
http://www.braininjurysurvivor.org
(Clicks: 9; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
"The purpose of BrainLife is to collect and offer to brain tumor patients, caregivers and medical/health professionals, references to the latest published medical sources in the field of brain (and other CNS) tumor research and treatment....The places of origin are: peer-reviewed journals and medical databases. Some meeting proceedings are included too. The sources (abstracts, references and full-text articles) are republished with their original contents." This web site is certified by the Health on the Web Foundation. (HON certified.)
http://www.brainlife.org/database.htm
(Clicks: 3; Comments: 0; Listing added: Jan 1, 2010) Listing Details Report Broken  Listing
Brain Teasers, Riddles, Trivia, Brain
Exercises, Games, Forums and more...
http://www.braingle.com/
(Clicks: 5; Comments: 0; Listing added: Dec 20, 2009) Listing Details Report Broken  Listing