Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy
TBI: Traumatic Brain Injury
We have placed "TBI" as a top level category in this directory, because it is a well known term that many people would expect to find at the top level, so to speak. However, in medical classification systems, one sees the following "tree" that leads to TBI: "Diseases and Conditions>Neurological Disorders>Brain Trauma. " So, as in the medical prevailing classification system, we have placed many of our TBI listings under "Diseases and Conditions". For further clarification, we are using the following tree: "Diseases and Conditions>(Neurological Disorders)>Acquired Brain Injury>Traumatic Brain Injury." Therefore, please look in this directory under the top category "Diseases and Conditions" for many listings related to TBI. Secondly, TBI is a type of ABI, therefore Acquired Brain Injury (ABI) is also a related category. Just remember that old logic problem from school, revised, "All TBI's are ABI's, but not all ABI's are TBI's."
See below under related categories.
August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States. Topics: Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed National Standards Regulation of College Disability Programs Review of College Disability Programs Public Access to Information about College Disability Programs
Classification and Complications of Traumatic Brain Injury Epidemiology, Pathophysiology, Measures of Severity, Medical Complications, Agitation, Symptoms Of TBI , Outcome Measures, Prognosis "The following groups are at particular risk for TBI: Males are about twice as likely as females to sustain a TBI. Infants and children aged 0-4 and adolescents aged 15-19 years are the 2 age groups at highest risk for a TBI. Adults aged 75 years or older have the highest rates of TBI-related hospitalization and death." Early Glasgow Outcome Scale scores predict long-term functional outcome in patients with severe traumatic brain injury. J Neurotrauma. ...
SABI means "Survivor of Acquired Brain Injury" and also "Survivor Advocate regarding Brain Injury". This term was coined by abi survivor (and tbi survivor) Sue Hultberg in the year 2000. The term is used as a rallying term for survivor advocates who are associated with the Brain Injury Network, an international and USA national brain injury survivor advocacy non-profit organization that operates from Santa Rosa, California. The Brain Injury Network hosts several SABI advocacy forums online. SABI advocates are interested in the creation and dissemination of survivor public policy. SABI advocates think in terms of a survivor-driven agenda.
This online social community is dedicated to bringing people with brain injuries together to work collectively on public policy and advocacy concerns of our surivor brain injury community. In addition, the SABI network provides a social and peer support gathering point on the Internet where attention to privacy concerns is more important than produciing a public archive forum which may be seen by all. SABI is not interested in disclosing survivor stories for advertising or securing some form of profit. SABI does not harvest "patient data". SABI does not sell member information nor does it seek commercial endorsements.
This web site concerns itself with the worldwide traumatic brain injury (TBI) survivor community, a robost and vibrant community of individuals who have sustained some kind of traumatic brain injury. The site honors TBI brain injury survivor leaders. "Many people have been members of our community a long time and have worked hard on behalf of our TBI survivor community. Please see our TBI Survivor Honor Roll, which we intend to expand over time." There is a discussion of the early history of the "TBI Survivor Movement", sometimes referred to as the "Brain Injury or Acquired Brain Injury Survivor Movement". There are also discussions of the causes and forms of TBI. TBI is a subset of ABI (acquired brain injury). To help survivors understand the difference between traumatic brain injury and other types of brain injury, information about other kinds of brain injury is also included. Additionally, criteria which helps tbi survivors evaluate online brain injury or tbi social communities is also included. The author of the material is Susan C. Hultberg, J.D. (1978), tbi survivor (1985), and M.A. (1996).
Listing added: Nov 19, 2010)