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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy

State Level and In-State Resources, Services and Programs

This category includes state level listings. It also includes U. S. Territorial and U. S. Protectorate listings.
To find the average cost in your state for a nursing home, assisted living facility, adult day center, or home health aide, locate your state in the tables below. The answers may surprise you.rnThis information was taken from two surveys done by the MetLife Mature Market Institute. These dollar figures represent an average cost based on a sample of long-term care services/facilities in your state for 2007. Your actual costs will vary. Use these costs as a guide in your long-term care planning.rn
(Clicks: 70; Comments: 0; Listing added: May 28, 2008) Listing Details Report Broken  Listing
American College of Surgeon's Consultation/Verification Program. This program validates the resources for trauma care at trauma centers. The ACS does not actually designate a trauma center to be a level one or level two or level three, etc. trauma center. But it does verify the presence of resources listed in the "Resources for Optimal Care of the Injured Patient" to meet each of these designations.
American College of Surgeons
633 N. Saint Clair St.
Chicago, Il. 60611-3211
Telephone: (312) 202-5000
Toll Free: 1.800.621.4111. Fax 312-202-5001
(Clicks: 15; Comments: 0; Listing added: Apr 3, 2008) Listing Details Report Broken  Listing
(Clicks: 5; Comments: 0; Listing added: May 15, 2008) Listing Details Report Broken  Listing
State Agencies Related to PAS. Resources for employment of persons with disabilities. .... ILC Contact Information
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CIL Management Center (CILMC) provides directory of Independent Living Centers in the U.S. and U. S. territories. CILMC is funded through the Rehabilitation Research and Training Center on Independent Living Management (RRTC-ILM), a national research and training project funded by the U.S. Dept. of Education, National Institute on Disability and Rehabilitation Research and the Rehabilitation Services Administration.
(Clicks: 24; Comments: 0; Listing added: May 15, 2008) Listing Details Report Broken  Listing
ILRU: Independent Living Research Utilization at TIRR - Home page
The website is sponsored by the Baylor College of Medicine. Information, training, research and technical assistance in independent living. Definition of "Center for Independent Living" under Section 702 of the Rehabilitation Act of 1973. They provide directories of independent living centers and state independent living councils. Guide to Disability Law.
2323 South Shepherd Suite 1000 Houston, TX 77109
phone: (713)-520-0232 ext. 130 (voice/TYY) and 713-520-5136
TTY Fax: 713-520-5785

Filed under independent living, databases, law, state, Texas and research.
(Clicks: 7; Comments: 0; Listing added: Apr 20, 2008) Listing Details Report Broken  Listing
Nationwide network of congressionally mandated, legally based disability rights agencies. There is one in each state.
(Clicks: 1; Comments: 0; Listing added: Apr 2, 2008) Listing Details Report Broken  Listing
National Association of State Head Injury Administrators
TBI Technical Assistance. TBI Federal Agency Watch. State programs. HRSA program information. Technical trainings, webcasts.
4330 East West Highway, Suite 301
Bethesda, MD 20814
Phone: 301-656-3500
Fax: 301-656-3530
(Clicks: 4; Comments: 0; Listing added: Dec 13, 2009) Listing Details Report Broken  Listing
Brain injury policy, program, and service resources for state employees and others interested in state government. Its purpose is to formulate and influence the establishment of sound national head injury policy; and to assist and serve state ...NASHIA assists state government in ...
(Clicks: 3; Comments: 0; Listing added: Apr 1, 2008) Listing Details Report Broken  Listing
After receiving several requests from across the nation for information about local State Rehabilitation Councils or for a local vocational rehabilitation, the Pennsylvania Rehabilitation Council assembled a list of state rehabilitation councils.

They also provide a list of state vocational rehabilitation programssvrp.html
(Clicks: 6; Comments: 0; Listing added: Mar 27, 2008) Listing Details Report Broken  Listing
A national survey of all 81 state rehabilitation programs, conducted in 1997 and 1998, examined the extent to which state rehabilitation agencies provided ...
(Clicks: 1; Comments: 0; Listing added: Mar 29, 2008) Listing Details Report Broken  Listing

SOURCE: Brain Injury Network

Jan 11, 2011 11:11 ET

Brain Injury Network Announces the Human Rights Issues and Concerns of People With Acquired Brain Injury From Traumatic Brain Injury (TBI), Brain Cancer, Brain Illness, Stroke, and Other Forms of ABI

People With Acquired Brain Injuries Consider Their Human Rights and Their Basic Human Safety Net to Be Their Most Vital Issues

SANTA ROSA, CA--(Marketwire - January 11, 2011) - The Brain Injury Network, an all acquired brain injury survivor organization (founded 1998), has announced human rights issues important to the ABI survivor community. BIN is a USA national and international organization promoting ABI survivor collective advocacy, citizen action and human rights. People with ABI at BIN have developed a collective consciousness and have articulated many issues that need public declaration. BIN is disseminating a consumer driven policy platform. We request that other policy advocates emphasize our recommendations and work for laws, standards and procedures that will protect vulnerable people who have ABI.

"The most important thing to us is our human rights, not our role as patients or research subjects. We wish to be perceived as human beings with the same rights and desires to live safely, with the protection of law, and with the same respect and dignity that other people have," said Susan C. Hultberg, President and Executive Director of the Brain Injury Network and brain injury survivor. "Our membership has stated repeatedly that our main concern is our basic human rights and the basic human safety net. This means basic shelter, food, and medical care. It is our position that the basic human safety net for a person with incapacitating cognitive and/or physical disabilities after brain injury is even more important than community reintegrative retraining programming."
BIN is also concerned about safety, privacy, and confidentiality concerns for people with ABI, especially individuals with brain injury who participate on Internet social communities. Web administrators of social communities for individuals with brain injuries should set privacy defaults to maximum and not allow public archiving of participants' posts in search engines.

Additionally, medical, legal, government and other venues should use consistent definitions of ABI and TBI. Medical authorities should create a Post-Traumatic Brain Injury Syndrome (PTBIS) traumatic brain injury medical classification. PTBIS is an umbrella term being circulated by BIN to medical authorities in the hopes that they will utilize this new medical classification.

Other policy statements and guidelines of the Brain Injury Network may be viewed on its website at
(Clicks: 186; Comments: 0; Listing added: Jan 11, 2011) Listing Details Report Broken  Listing
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