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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy

Search Your Soul Issues

Although not all survivors in our acquired brain injury (ABI) community agree on every single issue, there are numerous topics which we are thinking about. Many of us have our own perspectives on various issues, but, where possible, we are attempting to formulate consensus opinions. Because of what has happened to us, we are particularily interested in the matters discussed below in the "search your soul issues" section. Please join us in pondering these issues.

Sabi Sue (tbi, 1985)

Susan C. Hultberg, president of the Brain Injury Network, an international and U.S. national advocacy organization for people who have sustained brain injuries, is pleased to announce the publication of her new book entitled Brain Injury Advocates: The Emergence of the People with Acquired Brain Injury Human and Civil Rights Movement. The book is currently available for purchase at the following link:
(Clicks: 175; Comments: 0; Listing added: Aug 2, 2012) Listing Details Report Broken  Listing
Young people in nursing homes also suffer from social isolation. ... 30, no. 1 O�Reilly K, Pryor J 2002, �Young people with brain injury in nursing homes: ...
(Clicks: 2; Comments: 0; Listing added: Jun 11, 2008) Listing Details Report Broken  Listing
Apr 7, 2007 ... Recently, a new approach to testing involves the evaluation of substances or physical properties using computer models. ...
(Clicks: 4; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
Sunday, 16 September, 2001, UK
Head injury care 'failing'
Levels of care for patients "varies considerably"
Care for patients with head injuries does not match standards set down two years ago, (1999) research suggests. ...indicated that more than half of head injury care is provided by general or orthopaedic surgeons. ...
(Clicks: 1; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States.
Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed
National Standards
Regulation of College Disability Programs
Review of College Disability Programs
Public Access to Information about College Disability Programs
(Clicks: 55; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
Although one has made it through so far, the other two are still on life support with a clinical diagnoses of being totally brain dead. ...
(Clicks: 2; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
In this policy statement dated 3-17-13 the Brain Injury Network affirms that individuals with acquired brain injuries have the right to maintain relationships with their minor children.
(Clicks: 4; Comments: 0; Listing added: Sep 12, 2013) Listing Details Report Broken  Listing
Can computer models replace animal testing?
16 May 2006 by Celeste Biever
Magazine issue 2551
... As the public debate rages over the use of animals in drug development, a change is taking place in labs across the world.
(Clicks: 21; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
CDC Study Finds that Adoption of the Brain Trauma Foundation Guidelines Could Result in a Substantial Reduction in Traumatic Brain-Injury-Related Deaths

The December issue of the Journal of Trauma: Injury, Infection, and Critical Care features a study conducted by CDC on the effectiveness of adopting the Brain Trauma Foundation (BTF) in-hospital guidelines for the treatment of adults with severe traumatic brain injury (TBI).
This study demonstrates that routine use of these guidelines could result in a substantial reduction in deaths and medical, rehabilitative, and societal costs.
The BTF guidelines for in-hospital care were developed over 10 years ago, in collaboration with the American Association of Neurological Surgeons (AANS). Companion guidelines for pre-hospital care were prepared with the support of the National Highway Traffic Safety Administration (NHTSA) and issued later. Although disseminated widely, these guidelines need far greater implementation.
(Clicks: 11; Comments: 0; Listing added: Jun 6, 2008) Listing Details Report Broken  Listing
Victimization of Persons with Traumatic Brain Injury or Other Disabilities
A Fact Sheet for Professionals

According to the U.S. Department of Justice (2004), victimization occurs when “…a person suffers direct or threatened physical, emotional, and/or financial harm.” Victimization can include physical violence, sexual violence, psychological or emotional abuse, and neglect. The Centers for Disease Control and Prevention (CDC) acknowledges such victimization as a serious and preventable public health problem.

Centers for Disease Control and Prevention
Part of the US Department of Health and Human Services
1600 Clifton Rd, Atlanta, GA 30333, U.S.A.
Public Inquiries: (404) 498-1515 / (800) 311-3435

CDC-INFO Contact Center
1-800-CDC-INFO (1-800-232-4636)
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There are several non-animal research models that can also be used to help ... Computer Models: Computer models can be used to simulate diseases and to help ...
(Clicks: 1; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
Sandia, UNM research shows brain injury may occur within one millisecondafter head hits car windshield. Research by
Sandia engineer Paul Taylor of Sandia’s Multiscale Computational Materials Methods Dept. 1435 and Corey Ford, neurologist at University of New Mexico’s Department of Neurology and MIND Imaging Center, showed that brain injury may occur within one millisecond after a human head is thrust into a windshield as a result of a car accident.
This happens prior to any overall motion of the head following impact with the windshield and is a new concept to consider for doctors interested in traumatic brain injury (TBI). Paul says that modeling brain injury is a far more humane way to study scenarios leading to TBI than the traditional trial-and-error approach using laboratory animals.

Sandia is a government-owned/contractor operated (GOCO) facility. Sandia Corporation, a Lockheed Martin company, manages Sandia for the U.S. Department of Energy's National Nuclear Security Administration. We seek collaborative partnerships on emerging technologies that support our mission.“Securing a Peaceful and Free World Through Technology”
(Clicks: 9; Comments: 0; Listing added: May 2, 2008) Listing Details Report Broken  Listing
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