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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy


Needs and Resources Assessments

Conducting a Traumatic Brain Injury (TBI) Needs and Resources Assessment and developing a TBI State Action.
HRSA TBI Program.
Source: Maternal and Child Health Bureau (MCHB) of the U. S. Dept of Health and Human Services
http://mchb.hrsa.gov/programs/tbi.htm
(Clicks: 12; Comments: 0; Listing added: Jan 3, 2010) Listing Details Report Broken  Listing
State of Ohio's Needs and Resource Assessment of Individuals with Brain Injuries and Their Families
by Ohio Legal Rights Service
March 2006
http://olrs.ohio.gov/TBIReport/tbireport.htm
(Clicks: 6; Comments: 0; Listing added: Jan 3, 2010) Listing Details Report Broken  Listing
Rush NeuroBehavioral Center
4711 W. Golf Road
Suite 1100
Skokie, IL 60076
Phone: (847) 933‑9339
E-mail: info@rnbc.org
Specialize in children, teen and young adult. Clinical assessments.
Search IEP in their search box. Advocating for your Child. Understanding the IEP Process, etc. Glossary: SELD Social Emotional Learning Disorder SLD Specific Learning Disability SSI Supplemental Security Income TBI Traumatic Brain Injury ...
http://www.rnbc.org/
(Clicks: 2; Comments: 0; Listing added: Apr 10, 2008) Listing Details Report Broken  Listing
TBI Needs and Resrouces Assessment for New Jersey
CSHP
Rutgers Center for State Health Policy
The Institute for Health, Health Care Policy and Aging Research
June 2009
http://www.cshp.rutgers.edu/Downloads/8090.pdf
(Clicks: 6; Comments: 0; Listing added: Jan 3, 2010) Listing Details Report Broken  Listing
@ SABI
SABI means "Survivor of Acquired Brain Injury" and also "Survivor Advocate regarding Brain Injury". This term was coined by abi survivor (and tbi survivor) Sue Hultberg in the year 2000. The term is used as a rallying term for survivor advocates who are associated with the Brain Injury Network, an international and USA national brain injury survivor advocacy non-profit organization that operates from Santa Rosa, California. The Brain Injury Network hosts several SABI advocacy forums online. SABI advocates are interested in the creation and dissemination of survivor public policy. SABI advocates think in terms of a survivor-driven agenda.
http://sabi.name
(Clicks: 214; Comments: 0; Listing added: Apr 22, 2010) Listing Details Report Broken  Listing
Survivor Priorities and Survivor Community Priorities
Access to counseling, education, information, medical treatment and mental health services.
Affordable clothing, food, health care, housing, rehabilitation services, and transportation.
An accessible world.
Assistive devices and medical equipment.
Assisted housing.
Caregiver help.
Community reintegration programs.
Crisis management.
Disability insurance.
Dignity.
Disability Insurance.
Educational programs dealing with health, prevention, public awareness and safety.
Help negotiating the system.
Help transitioning from the hospital and rehabilitation setting to the community (community reintegration services).
Honesty.
Independent living skills training.
Information and referral services.
Insurance covering rehabilitation, for example, cognitive, occupational, physical, and speech therapy rehabilitation.
Insurance in spite of our having brain injuries.
Job training, follow-along and accommodations.
Medical insurance.
Peer support.
Programs to teach people with brain injuries strategies that help them overcome cognitive, physical and behavioral issues.
Programs to apprise us of our strengths and to help us utilize our strengths.
Ombudsmen.
Research.
Respect.
Safe programs.
Special interventions for survivors who are isolated, disabled or homeless.
Universal health care.
Source: Brain Injury Nework. ABI Advocacy by and for Survivors of Acquired Brain Injuries
http://braininjurynetwork.org/publicpolicy/survivorpriorities.html
(Clicks: 16; Comments: 0; Listing added: Jan 3, 2010) Listing Details Report Broken  Listing
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