Brain Injury Network Article: Protect Your Privacy and Guard Your Confidential Information On-Line! Summary: If you want to join social on-line communities, check them out, thoroughly, before you join. Also, find out what kind of credentials the administrators of the site have, if you can. And when in on-line groups or communities: (1) Sign up using an alias name. (2) Use a private profile. (3) Do not give out your address, phone number, or birth date. (4) Do not use your real name or your parent’s or other relatives’ last names in discussions. (5) Don’t use your primary email address, especially if it contains your actual name. Create easily disposable secondary (subaccount) email addresses to use instead. (6) Don’t share medical data about yourself by filling out on-line forms from social communities. For example, don’t share your insurance particulars, your doctor’s name, your medication list, etc. (7) If a site allows you to modify your privacy and archival settings (a good sign) check them, because chances are the default setting is to allow your content to be accessible to the entire Internet community, and you may wish to tighten up who may view your posts. (8) Just remember that if you share any content with anyone, anyone at all, he or she will be able to share your material elsewhere (even though that would be impolite it happens all of the time), so be careful what you write on the Internet. You never know where it will end up, and once you have written something it may be on the Internet for eternity.
This online social community is dedicated to bringing people with brain injuries together to work collectively on public policy and advocacy concerns of our surivor brain injury community. In addition, the SABI network provides a social and peer support gathering point on the Internet where attention to privacy concerns is more important than produciing a public archive forum which may be seen by all. SABI is not interested in disclosing survivor stories for advertising or securing some form of profit. SABI does not harvest "patient data". SABI does not sell member information nor does it seek commercial endorsements.