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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy


Human and Civil Rights

Featured
Susan C. Hultberg, president of the Brain Injury Network, an international and U.S. national advocacy organization for people who have sustained brain injuries, is pleased to announce the publication of her new book entitled Brain Injury Advocates: The Emergence of the People with Acquired Brain Injury Human and Civil Rights Movement. The book is currently available for purchase at the following link:
https://www.createspace.com/3601205
https://www.createspace.com/3601205
(Clicks: 157; Comments: 0; Listing added: Aug 2, 2012) Listing Details Report Broken  Listing
Partner
This nonprofit agency is a USA national and international survivor of abi or tbi advocacy organization operated for and by survivors. We are interested in promoting the human rights and civil rights of persons who have sustained acquired brain injuries. We have developed and are disseminating a public policy agenda which reflects our concerns for our community.
http://www.braininjurynetwork.org
(Clicks: 703; Comments: 0; Listing added: Jan 29, 2008) Listing Details Report Broken  Listing
Partner
This is the first ever USA national and international brain injury (abi which includes tbi) survivor policy and collective advocacy online forum. This online social community has developed, implemented and disseminated public policy on behalf of the brain injury survivor community since 2006. Everyone involved is a brain injury survivor and a brain injury survivor advocate. This is also a chat; peer support; information, education and referral online social community. This group is survivor operated and survivor-led. The owner/moderator is a tbi (traumatic brain injury) survivor. SABI is affiliated with the Brain Injury Network, a Section 501(c) (3) nonprofit advocacy organization and network operated by and for survivors of brain injury. Topics discussed include survivor priorities, brain injury survivor human rights, best practices for service provider organizations, government public policy, problems with insurance, community access, health care costs, basic safety-considerations, patient empowerment, patient advocacy, community reintegration, post tbi, Post TBI Syndrome, assistive devices, medical research standards, privacy and safety on the Internet, assessing social communiities, standards for college programs for students with brain injury, sport injuries, children and brain injury, school and brain injury, and a host of other topics.
http://health.groups.yahoo.com/group/survivoracquiredbraininjury
(Clicks: 220; Comments: 0; Listing added: Feb 2, 2008) Listing Details Report Broken  Listing
Brain Injury Network Policy dated 9-8-13

We find it highly objectionable and unethical that certain attorneys are seeking out individuals with acquired brain injuries (from tbi, etc.), are enticing them to publically share their stories on the attorneys’ websites and blogs, and are further distributing said stories to other social media such as Facebook and YouTube. Also: The Attorney-Client Relationship. Informed Consent and Mental Competency. Commercial Solicitation for Attorney’s Business Services. Recommendations to the American Bar Association (ABA), the State Bar Associations, Ethics and Professional Conduct Advisory Committees, and Legal Ethicists.
http://www.braininjurynetwork.org/publicpolicy/attorneysolicitations.html
(Clicks: 1; Comments: 0; Listing added: Dec 18, 2013) Listing Details Report Broken  Listing
August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States.
Topics:
Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed
National Standards
Regulation of College Disability Programs
Review of College Disability Programs
Public Access to Information about College Disability Programs
http://braininjurynetwork.org/nationalstandards.html
(Clicks: 49; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
Post-Secondary Education Brain Injury Program Protocols as developed by the Brain Injury Network (BIN)
Article dated 9-9-09
This section discusses the Brain Injury Network recommendations for nationwide protocols for postsecondary level college programs for students with brain injuries. These protocols were developed by the Brain Injury Network in the years 2005-2006. Let us keep in mind that many people with brain injuries have very few options for rehabilitation from their injuries. One of the few available, affordable, resources for cognitive retraining, or training, is the postsecondary educational system....Therefore, we recommend the creation of nationwide protocols for all postsecondary education programs for students with brain injuries. (In fact, we espouse “national standards for college programs”.)
http://braininjurynetwork.org/postsecondaryprotocols.html
(Clicks: 14; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
In this policy statement dated 3-17-13 the Brain Injury Network affirms that individuals with acquired brain injuries have the right to maintain relationships with their minor children.
http://braininjurynetwork.org/publicpolicy/parentalrights.html
(Clicks: 4; Comments: 0; Listing added: Sep 12, 2013) Listing Details Report Broken  Listing
The Brain Injury Network - ABI Advocacy by Survivors Cause on Facebook.
Please help brain injury survivor advocates raise public awareness about issues of importance to our survivor community.
http://www.causes.com/causes/221624
(Clicks: 22; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
Brain Injury Network press release regarding the human rights issues of people with acquired brain injuries. MarketWire Press Release Dated 1--11-11
http://www.marketwire.com/press-release/brain-injury-network-announces-human-rights-issues-concerns-people-with-acquired-brain-1378740.htm
(Clicks: 8; Comments: 0; Listing added: Jun 19, 2011) Listing Details Report Broken  Listing
Why We Need Collective Advocacy
Article: We survivors speak best regarding our issues and regarding advocacy and public policy invovling our brain injury survivor community.
This site is dedicated to the world-wide brain injury community and especially to those who wish to participate in collective advocacy via the Brain Injury Network, a survivor advocacy organization.
http://www.braininjurysurvivor.org
(Clicks: 9; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
The Center on Human Policy, Law, and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy, which was founded by Dr. Burton Blatt in 1971. CHPLDS is a Syracuse University based policy, research, and advocacy organization involved in the national movement to insure the .... Provides information concerning those who have been labeled with cognitive disabilities. Resources, interdisciplinary disability research, disability studies

Center on Human Policy, Law and Disability Studies
Syracuse University
805 South Crouse Ave.
Syracuse, NY 13244-2280
ATTN: Rachael Zubal

email: thechp@sued.syr.edu
http://disabilitystudies.syr.edu/default.aspx
(Clicks: 17; Comments: 0; Listing added: Apr 12, 2008) Listing Details Report Broken  Listing
... and universal human rights for people with intellectual and developmental disabilities. Attention-Deficit/Hyperactivity Disorder (ADHD) ...
http://www.disability.gov/health/developmental_disabilities
(Clicks: 9; Comments: 0; Listing added: May 24, 2008) Listing Details Report Broken  Listing
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