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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy

Ethics and Brain Injury

Susan C. Hultberg, president of the Brain Injury Network, an international and U.S. national advocacy organization for people who have sustained brain injuries, is pleased to announce the publication of her new book entitled Brain Injury Advocates: The Emergence of the People with Acquired Brain Injury Human and Civil Rights Movement. The book is currently available for purchase at the following link:
(Clicks: 175; Comments: 0; Listing added: Aug 2, 2012) Listing Details Report Broken  Listing
AAN Position Statements
The American Academy of Neurology (AAN) has developed position statements on a variety of ethical issues to help guide neurologists and others in decision making. The following position statements are available either online or through AAN Member Services.....
(Clicks: 23; Comments: 0; Listing added: Jun 22, 2009) Listing Details Report Broken  Listing
Brain Injury Network Policy dated 9-8-13

We find it highly objectionable and unethical that certain attorneys are seeking out individuals with acquired brain injuries (from tbi, etc.), are enticing them to publically share their stories on the attorneys’ websites and blogs, and are further distributing said stories to other social media such as Facebook and YouTube. Also: The Attorney-Client Relationship. Informed Consent and Mental Competency. Commercial Solicitation for Attorney’s Business Services. Recommendations to the American Bar Association (ABA), the State Bar Associations, Ethics and Professional Conduct Advisory Committees, and Legal Ethicists.
(Clicks: 2; Comments: 0; Listing added: Dec 18, 2013) Listing Details Report Broken  Listing
August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States.
Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed
National Standards
Regulation of College Disability Programs
Review of College Disability Programs
Public Access to Information about College Disability Programs
(Clicks: 55; Comments: 0; Listing added: Apr 19, 2010) Listing Details Report Broken  Listing
In this policy statement dated 3-17-13 the Brain Injury Network affirms that individuals with acquired brain injuries have the right to maintain relationships with their minor children.
(Clicks: 4; Comments: 0; Listing added: Sep 12, 2013) Listing Details Report Broken  Listing
General Ethics: Broad Topics Involving Ethics. Who's Watching the Watchdog? Knight Kiplinger Ethics Resource Center 2005. Society relies upon a free, ...
(Clicks: 11; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
New South Wales Government
Physical Address: Lookout Road, New Lambton NSW 2305, Australia
Postal Address: Locked Bag 1, New Lambton NSW, 2305, Australia
Telephone within Australia: 02 49214960
Telephone outside Australia: 61249214960
Hunter New England Area Health Service (HNEAHS)
Many topics in the Site Index including Falls Injury Prevention, Human Research Ethics, Hospital in the Home, JHH Trauma Service, John Hunter Hospital, Research Ethics, Human.
(Clicks: 4; Comments: 0; Listing added: Apr 14, 2008) Listing Details Report Broken  Listing
HST.590 / HST.502 Biomedical Engineering Seminar Series: Topics in Medical Ethics and Responsible Conduct in Research. Fall 2005 - Spring 2006 ...
(Clicks: 5; Comments: 0; Listing added: May 25, 2008) Listing Details Report Broken  Listing
Policy Statement from the Brain Injury Survivor Community Regarding Post-Acute Medical Environments, Assisted Living Facilities and Nursing Home Placements for People with Brain Injury; Use of Psychotropic Drugs

Source: Brain Injury Network
(Clicks: 23; Comments: 0; Listing added: Jun 19, 2011) Listing Details Report Broken  Listing

SOURCE: Brain Injury Network

Jan 11, 2011 11:11 ET

Brain Injury Network Announces the Human Rights Issues and Concerns of People With Acquired Brain Injury From Traumatic Brain Injury (TBI), Brain Cancer, Brain Illness, Stroke, and Other Forms of ABI

People With Acquired Brain Injuries Consider Their Human Rights and Their Basic Human Safety Net to Be Their Most Vital Issues

SANTA ROSA, CA--(Marketwire - January 11, 2011) - The Brain Injury Network, an all acquired brain injury survivor organization (founded 1998), has announced human rights issues important to the ABI survivor community. BIN is a USA national and international organization promoting ABI survivor collective advocacy, citizen action and human rights. People with ABI at BIN have developed a collective consciousness and have articulated many issues that need public declaration. BIN is disseminating a consumer driven policy platform. We request that other policy advocates emphasize our recommendations and work for laws, standards and procedures that will protect vulnerable people who have ABI.

"The most important thing to us is our human rights, not our role as patients or research subjects. We wish to be perceived as human beings with the same rights and desires to live safely, with the protection of law, and with the same respect and dignity that other people have," said Susan C. Hultberg, President and Executive Director of the Brain Injury Network and brain injury survivor. "Our membership has stated repeatedly that our main concern is our basic human rights and the basic human safety net. This means basic shelter, food, and medical care. It is our position that the basic human safety net for a person with incapacitating cognitive and/or physical disabilities after brain injury is even more important than community reintegrative retraining programming."
BIN is also concerned about safety, privacy, and confidentiality concerns for people with ABI, especially individuals with brain injury who participate on Internet social communities. Web administrators of social communities for individuals with brain injuries should set privacy defaults to maximum and not allow public archiving of participants' posts in search engines.

Additionally, medical, legal, government and other venues should use consistent definitions of ABI and TBI. Medical authorities should create a Post-Traumatic Brain Injury Syndrome (PTBIS) traumatic brain injury medical classification. PTBIS is an umbrella term being circulated by BIN to medical authorities in the hopes that they will utilize this new medical classification.

Other policy statements and guidelines of the Brain Injury Network may be viewed on its website at
(Clicks: 188; Comments: 0; Listing added: Jan 11, 2011) Listing Details Report Broken  Listing
Postsecondary Education Rehabilitation Transition (PERT) Program ... Virginia Departments of Education and Rehabilitative Services through Woodrow Wilson Rehabilitation Center...

See also for ethics information (non-discrimination policy, dual relationships, confidentiality, professional ethics, etc.; responsibilities of staff and organization to consumers, workers, the agency itself and the community at large)

Pert Program
PO Box 1500
Box W-350
(Street address: 28 Andrew Russell Lane)
Fisherville, Virginia

(800) 345-9972
TTY: 800-811-7893

Filed under Virginia, postsecondary education, ethics, guidelines and disability research
(Clicks: 8; Comments: 0; Listing added: Apr 19, 2008) Listing Details Report Broken  Listing
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