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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy


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Susan C. Hultberg, president of the Brain Injury Network, an international and U.S. national advocacy organization for people who have sustained brain injuries, is pleased to announce the publication of her new book entitled Brain Injury Advocates: The Emergence of the People with Acquired Brain Injury Human and Civil Rights Movement. The book is currently available for purchase at the following link:
https://www.createspace.com/3601205
https://www.createspace.com/3601205
(Clicks: 154; Comments: 0; Listing added: Aug 2, 2012) Listing Details Report Broken  Listing
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This is the first ever USA national and international brain injury (abi which includes tbi) survivor policy and collective advocacy online forum. This online social community has developed, implemented and disseminated public policy on behalf of the brain injury survivor community since 2006. Everyone involved is a brain injury survivor and a brain injury survivor advocate. This is also a chat; peer support; information, education and referral online social community. This group is survivor operated and survivor-led. The owner/moderator is a tbi (traumatic brain injury) survivor. SABI is affiliated with the Brain Injury Network, a Section 501(c) (3) nonprofit advocacy organization and network operated by and for survivors of brain injury. Topics discussed include survivor priorities, brain injury survivor human rights, best practices for service provider organizations, government public policy, problems with insurance, community access, health care costs, basic safety-considerations, patient empowerment, patient advocacy, community reintegration, post tbi, Post TBI Syndrome, assistive devices, medical research standards, privacy and safety on the Internet, assessing social communiities, standards for college programs for students with brain injury, sport injuries, children and brain injury, school and brain injury, and a host of other topics.
http://health.groups.yahoo.com/group/survivoracquiredbraininjury
(Clicks: 220; Comments: 0; Listing added: Feb 2, 2008) Listing Details Report Broken  Listing
ABLEDATA is a database of assistive products. This database is maintained by the National Institute on Disability and Rehabilitation Research of the US Department of Education. The site does not sell products, but can help seekers locate companies that sell assistive technology products and rehabilitation equipment. The database is broken down into major categories such as orthotics, prosthetics. therapeutic aids, aids for daily living, wheeled mobility and many others.

Phone: (800) 227-0216.
Fax: (301) 608-8958.
TYY: (301) 608-8912.
http://www.abledata.com
(Clicks: 30; Comments: 0; Listing added: Mar 24, 2008) Listing Details Report Broken  Listing
Disability.gov (a U.S. government site from the Department of Labor's Office of Disability Employment Policy [ODEP]) provides quick and easy access to comprehensive information about disability programs, services, laws and benefits.
Disability-specific information for people with disabilities... databases, fact sheets, news articles and other resources ... "Connecting the Disability Community to Information and Opportunities." It was formerly called DisabilityInfo.gov.
To find disability resources in your state just click on the Find State and topic(s)
http://www.disability.gov/
(Clicks: 14; Comments: 0; Listing added: Jun 16, 2008) Listing Details Report Broken  Listing
(Editor: Even though this article was primarily for persons with psychiatric disabilities, the authors themselves indicate that many of their conclusions are applicable to persons with other types of disabilities. In the BID editor's estimation, that would include many persons with acquired brain injuries. As to their actual conclusions, the BID editor gives no opinion here. The BID editor merely states that these are topics that apply to people with brain injuries as well.)

Mission of the National Council on Disability
Overview and Purpose
The National Council on Disability (NCD) is an independent federal agency with 15 members appointed by the President of the United States and confirmed by the U.S. Senate. The purpose of NCD is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or significance of the disability, and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

Topics in the article include: livable communities, housing, employment, stigma and discrimination, recommendations, terminology, recovery model, empowerment, independent living, model programs, work, competitive employment, benefits, personal assistance services, self-help/peer support programs, networking, provider-run programs, medicaid funding, person-centered planning, self-determination, people living in rural areas, and accessing general medical care.

See also the National Empowerment Center.
http://www.ncd.gov/newsroom/publications/2008/LivableCommunities.html
(Clicks: 8; Comments: 0; Listing added: Apr 16, 2009) Listing Details Report Broken  Listing
@ SABI
SABI means "Survivor of Acquired Brain Injury" and also "Survivor Advocate regarding Brain Injury". This term was coined by abi survivor (and tbi survivor) Sue Hultberg in the year 2000. The term is used as a rallying term for survivor advocates who are associated with the Brain Injury Network, an international and USA national brain injury survivor advocacy non-profit organization that operates from Santa Rosa, California. The Brain Injury Network hosts several SABI advocacy forums online. SABI advocates are interested in the creation and dissemination of survivor public policy. SABI advocates think in terms of a survivor-driven agenda.
http://sabi.name
(Clicks: 237; Comments: 0; Listing added: Apr 22, 2010) Listing Details Report Broken  Listing
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