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Promoting Brain Injury Survivor Self-Advocacy and Collective Advocacy


Clearinghouses and Databases

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If you are looking for the Traumatic Brain Injury (TBI) Model Systems: The TBI Model Systems website is no longer being coordinated by Santa Clara Valley Medical Center. The new coordinating center for the TBI Model Systems website is Craig Hospital. The new TBI Model Systems website can be found at www.tbindsc.org

There are 16 centers across the USA. There are also 4 TBI Model System Longitudinal Follow-Up Centers. These projects are funded by the National Institute on Disability and Rehabilitation Research (NIDRR). These projects research the spectrum of care from point of injury, through rehabilitation, to integration back into the community. Each project also contributes to the TBI National Data Center at www.tbindsc.org
http://www.tbindsc.org
(Clicks: 66; Comments: 0; Listing added: Mar 27, 2008) Listing Details Report Broken  Listing
ABLEDATA is a database of assistive products. This database is maintained by the National Institute on Disability and Rehabilitation Research of the US Department of Education. The site does not sell products, but can help seekers locate companies that sell assistive technology products and rehabilitation equipment. The database is broken down into major categories such as orthotics, prosthetics. therapeutic aids, aids for daily living, wheeled mobility and many others.

Phone: (800) 227-0216.
Fax: (301) 608-8958.
TYY: (301) 608-8912.
http://www.abledata.com
(Clicks: 30; Comments: 0; Listing added: Mar 24, 2008) Listing Details Report Broken  Listing
U.S. Government Site.
"MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news."
http://www.nlm.nih.gov/medlineplus/aboutmedlineplus.html
(Clicks: 7; Comments: 0; Listing added: Sep 3, 2009) Listing Details Report Broken  Listing
The Agency for Toxic Substance and Disease Registry (ATSDR) is a Department of Health and Human Services Agency that coordinates with the Center for Disease Control (another DHHS agency) on many projects.

It publishes a toxicological profile information list that shows many substances that can cause brain damage in human beings.

Agency for Toxic Substance and Disease Registry
Division of Toxicology and Environmental Medicinre
1600 Clifton Road NE, Mailstop F-32
Atlanta, Georgia, 30333

phone: 1-800-CDC-INFO
TTY: 888-232-6348

Information Line and Technical Iinformation
Phone: 888-422-8737
Fax: 770-488-4178
http://www.atsdr.cdc.gov/dataresources.html
(Clicks: 3; Comments: 0; Listing added: Jun 6, 2008) Listing Details Report Broken  Listing
The Allen Brain Atlas-Mouse Spinal Cord is an interactive database of gene expression mapped across all anatomic segments of the cord for juveniles and adults. Human Cortex Study.

The Allen Institute for Brain Science, located in Seattle, Washington, was founded in 2003 by Philanthropists Paul G. Allen and Jody Allen Patton as a nonprofit corporation Section 501(c) (3) and medical research organization.
http://www.brain-map.org
(Clicks: 5; Comments: 0; Listing added: Oct 15, 2008) Listing Details Report Broken  Listing
The purpose of BrainLife is to collect and offer to brain tumor patients, caregivers and medical/health professionals, references to the latest published medical resources in the field of brain (and other CNS) tumor research and treatment.

The website also maintains a structured database of peer-reviewed medical sources on brain (and other CNS) tumors, including experimental treatments and alternative therapies.
http://brainlife.org
(Clicks: 6; Comments: 0; Listing added: Apr 12, 2008) Listing Details Report Broken  Listing
"The purpose of BrainLife is to collect and offer to brain tumor patients, caregivers and medical/health professionals, references to the latest published medical sources in the field of brain (and other CNS) tumor research and treatment....The places of origin are: peer-reviewed journals and medical databases. Some meeting proceedings are included too. The sources (abstracts, references and full-text articles) are republished with their original contents." This web site is certified by the Health on the Web Foundation. (HON certified.)
http://www.brainlife.org/database.htm
(Clicks: 3; Comments: 0; Listing added: Jan 1, 2010) Listing Details Report Broken  Listing
The USA Centers for Disease Control and Prevention (CDC) presents health information in an A to Z index.
http://cdc.gov/az/a.html
(Clicks: 5; Comments: 0; Listing added: Feb 5, 2008) Listing Details Report Broken  Listing
Resources within the Medical and Healthcare Community.
http://www.parentcenterhub.org/repository/healthcare/
(Clicks: 2; Comments: 0; Listing added: Mar 29, 2008) Listing Details Report Broken  Listing
CIL Management Center (CILMC) provides directory of Independent Living Centers in the U.S. and U. S. territories. CILMC is funded through the Rehabilitation Research and Training Center on Independent Living Management (RRTC-ILM), a national research and training project funded by the U.S. Dept. of Education, National Institute on Disability and Rehabilitation Research and the Rehabilitation Services Administration.
http://www.wnyil.org/
(Clicks: 21; Comments: 0; Listing added: May 15, 2008) Listing Details Report Broken  Listing
Colorado Hospitals.
Additionally, "Te CHA DATABANK is a web-based database ( http://www.databank.org/ ) of hospital utilization and financial performance indicators. The database is the source of comparable information on average length of stay, outpatient statistics..." Over twenty state hospital associations are utilizing the CHA database format.
http://www.cha.com/index.php?option=com_content&task=view&id=19&Itemid=33
(Clicks: 5; Comments: 0; Listing added: Aug 20, 2009) Listing Details Report Broken  Listing
Disability.gov (a U.S. government site from the Department of Labor's Office of Disability Employment Policy [ODEP]) provides quick and easy access to comprehensive information about disability programs, services, laws and benefits.
Disability-specific information for people with disabilities... databases, fact sheets, news articles and other resources ... "Connecting the Disability Community to Information and Opportunities." It was formerly called DisabilityInfo.gov.
To find disability resources in your state just click on the Find State and topic(s)
http://www.disability.gov/
(Clicks: 14; Comments: 0; Listing added: Jun 16, 2008) Listing Details Report Broken  Listing
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